6 years ago my son was diagnosed with cancer. I have never celebrated his being NED (no evidence of disease) I’ve never made a big deal of it or even given it much acknowledgment. I always feared the minute I did, that would be the moment it all started again. So I silently let anniversaries pass... But now I feel like I can breath a bit. As far as neuroblastoma goes anyway (Lord knows we have had and still have other battles) . Clayton is now 5 years free. Free of chemotharapy, free of radiation, free of immunotherapy, free of hair loss and mucusitis and being neutropenic and hemorrhagic cystitis and BK virus and anaphylactic shock and crash carts outside the hospital door and extreme constipation and diarrhea caused my medicines and ports and hickmans and so many more terms no mother should ever need to know. But none of us will ever be rid of the memories and the pain and the fear. We wear them like scars. They are forever with us...but we also walked away with priceless lessons. Lessons not often learned by people who are not either well versed in pain or simply old with the wisdom of reflecting on life. Everything we went through gifted us a clarity of who we are and where we are going. We know what’s important and what is simply rubbish. Sure sometimes we still let the rubbish bog us down for a bit, but it doesn’t take long for us to regain our clarity and perspective...that time in our lives also helped prepare us further for the future battles life knew we would have. It robbed us of the luxury of being naive or lazy and made us fighters and advocates for our kid. Let me just tell you...there are good doctors/nurses/hospitals and bad ones. If medical professionals mess up, there won’t always be a chance to fix it. So if any medical professional ever acts like you’re keeping too close an eye on things or advocating for your kid too much or that you aren’t allowed a difference of opinion or a second opinion...grab your baby and run like hell. The good doctors/nurses/hospitals are out there and the beauty is you have the freedom to find them 👩👦 Funny how this all feels like yesterday...every detail. #childhoodcancer #specialneedsmom #specialneeds
Wild game gumbo...yes please. #husbandcanhunt #duckgumbo #wildgamegumbo #soulfood #homesteadeats #husbandsfavorite #southerneats
🦃 Gobble, Gobble 🦃...ready for some good food. I try to eat at least 80% clean and then I do 20% indulgent. Thursday is going to be that 20% All. Day. Long. Ready for it 🍽 #turkeyday #happythanksgiving #thatsfresh #noguiltjustgoodfood
My fireplace is in transition 🎃🍁 👉 🎄🎅🏼. Decided to go with white for Thanksgiving and gave the painted pumpkin thing a try...I’m not saying no to it...just not sure if I’ll do it again either.
Absolutely in ❤️ with Soulbowlz. Love anything quick and convenient that lets me nourish my body the right way with the right ingredients. These are SOOO good 🙌 #healthyeats #healthyonthego #soulbowlz
Hi there my little porch friend. #happyfall #fallflowers #frontporchdecor #livininmymums
Last ones promise 😍#autumnatthearboretum #dallasarboretum #dallasarboretumandbotanicalgarden #whenindallas #specialneedstravel
I found the mothership for all us pumpkin lovers 🎃😂🎃... Seriously though, Autumn at the Arboretum was awesome. We got to see their fall and Christmas displays. Their pumpkin village this year was Wizard of Oz themed and spectacular! #specialneedsmom #specialneedstravel #autumnatthearboretum #dallasarboretumandbotanicalgarden #whenindallas ...and this was a perfect thing to do with Clayton. He could run when he wanted and use one of their wheelchairs when he needed too. Everything was at his pace so it was perfect.
Goodbye RMH Dallas. Thank you for giving us a peaceful place to lay our heads in the middle of the bustling city. #supportronaldmcdonaldhouse #rmhdallas #rmhcharities #ronaldmcdonaldhousedallas