packing & cleaning...cleaning and packing... organizing and cleaning...packing & organizing... what does your day look like? . chhheck out our new caps 🧢 && all the other goods on @shop_conquerall. new inventory IS UP. website in bio.
CF & genetics 🧬. . cystic fibrosis is a double recessive genetic disorder. meaning...let me take you back to middle school science class...remember the punnett square? the box divided into four squares and you organized “T’s”? big T’s and little t’s?...that square helps you understand the genetics of CF. CF is a ‘tt’ disease → double recessive. meaning there is no dominant (large T) gene present. (swipe right to see a visual that might help you understand). . with CF being a ‘tt’ disease, it means two parents who are carriers of Cystic Fibrosis, have a 1 in 4 chance of having a child with CF. a 25% chance of having any children with cystic fibrosis. . my parents did not even know they were carriers of this disease until their first born child (me) was born with CF. they then proceeded to have 2/3 children be born with cystic fibrosis. . depending on how you look at it; they either have really bad luck and should stay away from Vegas. orrrr they are very lucky & even with low odds, still win. i prefer the latter & often encourage them to enter the lottery! 💰😉. . #cfawarenessmonth #cfawareness #livingwithcysticfibrosis
today is #NationalTeachersDay. this is the face of the woman who loves and cares for my sons well being deeply. the woman who has spent many hours this last year shaping him into a wonderful kid. helping him navigate toddler emotions. reminding him, “the hulk has to stay home but if hawke wants to come to preschool today, i would love that!” she teaches gently and guides them with love. she is patient and kind and understanding. we are so grateful for you Miss Martha. we love you big! -h and m . . swipe ☞︎ to see photos of Hawke’s first day of preschool 😍
CF & keeping perspective ✨. . *old photo*. . how do you stay positive? how do you deal knowing you’ve got a count down clock over your head? how can you even handle it? i receive questions like this; or of some sort, often. i wish i had a magical phrase to share w you that you. but i don’t have one...i have a few 😉here are two coping mechanisms i practice on the daily. i hope you try them too, and pray you feel better when you are down. 1️⃣ gratitude. -when things are crappy, i remember a time when they were worse, and am grateful for my ‘crappy’ now. -when i am sick, i am grateful that i’m not as ill as i once was. -when my mind is sad, i’m grateful that i recognize it is sad. that i’m not back living in the time when i was sad but didn’t know what was going on, or why. i see the depression and am grateful i see it. -when my marriage is struggling, i’m grateful my husband is not selling drugs. -when hawke and i are at odds with other, i’m grateful i do have a child to be at odds with. -when i have been at my lowest of health, i was grateful to be alive. -when my trials are too hard to bear, i am grateful for my trials and that they are not “_____” trial, one i could not bear. 2️⃣reciting Tom Hopkins chant: “I’m alive. I’m awake and I feel great. I feel good. I feel fine. I feel this way all the time.” tbh i don’t even know who “Tom Hopkins” is. but i do know we had these laminated charts hanging in our showers & when one person in our house started reciting, we all recited and yelled along with them. i believe no matter where you are in life, or what you are dealing with, these phrases can ring true to you. saying ‘i feel great’ even when you don’t, creates a physical shift in your mind & will make what you are dealing with become easier. ‘talking positively,’ as my parents taught me. ‘fake it til you make it,’ as my basketball coach taught me when dealing with free throw nerves. they do work. i promise they do. practice them and see it work in your own lives. above all; be grateful to be alive today. that is not a gift given to everyone, but today it is given to you.