• D I Y
Gotta love a diy job T-shirt for children in need 😂This day has got to be one of the easiest to ‘dress up’ for! Swipe to see how diddy he looks 2 years ago!
Children In Need fund the group that Nola attends on a Tuesday so its closer to my heart than usual this year! 🐻 #cin #childreninneed #childreninneed2019 #muftiday #mufti #eliotjude #mreliot #kidsfashion #kidstagram #instakids #pudsey #pudseybear #childhoodunplugged #childhoodcaptured #letthembelittle #watchthemgrow #themagicineveryday #raisingthoserascals #mom #mommy #momlife #mumlife
#motherhoodunpulgged #motherhoodthroughinstagram 
#snaphappybritmums
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    D I Y Gotta love a diy job T-shirt for children in need 😂This day has got to be one of the easiest to ‘dress up’ for! Swipe to see how diddy he looks 2 years ago! Children In Need fund the group that Nola attends on a Tuesday so its closer to my heart than usual this year! 🐻 #cin #childreninneed #childreninneed2019 #muftiday #mufti #eliotjude #mreliot #kidsfashion #kidstagram #instakids #pudsey #pudseybear #childhoodunplugged #childhoodcaptured #letthembelittle #watchthemgrow #themagicineveryday #raisingthoserascals #mom #mommy #momlife #mumlife #motherhoodunpulgged #motherhoodthroughinstagram #snaphappybritmums
  • W E A T H E R ☔️ Yesterday we headed down to Brighton as we had tickets for the sea life centre. I really couldn’t have picked a worse date in terms of weather! 🤦🏻‍♀️😬 It was pouring down! Leaving home it was dry & I hadn’t checked the weather, so wearing my Ugg’s & brand new faux fur jacket we left home with the aim to arrive in Brighton by 2pm. Sod’s law we got stuck in traffic on the M25 due to an accident on the other side. It was raining by this point so we checked the weather in Brighton...raining all day. When we arrived in Brighton I had planned to park near my old student house but discovered it’s all been changed to permit parking 🙄 or a 4 hour limit. Driving down to the seafront we got stuck in more traffic due to roadworks and then couldn’t find anywhere to park. So headed for one of the lanes car parks which was extortionate so didn’t park there. Then proceeded to get stuck in more traffic. By this time it was almost 3pm and we then realised last entry to sea life was 3pm! Fortunately they let us in but we were soaked from walking from the car to the sealife centre. We bought a drink & snack in the cafe as I needed to feed Nola then we carried on looking around before a staff member told us they were now shut (4pm) so we didn’t even see much! I assumed it shut at 5 or 6 🤷‍♀️ Cue a disappointed grumpy Eliot and the dread of going back out into the p*ssing rain! I bought a couple of ponchos to stop our already soaking coats from getting any wetter. We then met my uni friend & his pooch Nigel who Eliot was very taken with and had food & a catch up. Thankfully the rain had stopped by the time we left to walk back to the car 🙌🏼Moral of the story is plan better, check opening times & the weather!
#weekendtrip #brighton #rain #rainraingoaway #Brighton #brighton_ig #unimemories #goodtimes #brightonpier #makingmemories #family #familytime #motherhoodthroughinstagram #motherhoodunplugged #igers #momblogger #mumblogger #instakids #ukparentbloggers #snaphappybritmums
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    W E A T H E R ☔️ Yesterday we headed down to Brighton as we had tickets for the sea life centre. I really couldn’t have picked a worse date in terms of weather! 🤦🏻‍♀️😬 It was pouring down! Leaving home it was dry & I hadn’t checked the weather, so wearing my Ugg’s & brand new faux fur jacket we left home with the aim to arrive in Brighton by 2pm. Sod’s law we got stuck in traffic on the M25 due to an accident on the other side. It was raining by this point so we checked the weather in Brighton...raining all day. When we arrived in Brighton I had planned to park near my old student house but discovered it’s all been changed to permit parking 🙄 or a 4 hour limit. Driving down to the seafront we got stuck in more traffic due to roadworks and then couldn’t find anywhere to park. So headed for one of the lanes car parks which was extortionate so didn’t park there. Then proceeded to get stuck in more traffic. By this time it was almost 3pm and we then realised last entry to sea life was 3pm! Fortunately they let us in but we were soaked from walking from the car to the sealife centre. We bought a drink & snack in the cafe as I needed to feed Nola then we carried on looking around before a staff member told us they were now shut (4pm) so we didn’t even see much! I assumed it shut at 5 or 6 🤷‍♀️ Cue a disappointed grumpy Eliot and the dread of going back out into the p*ssing rain! I bought a couple of ponchos to stop our already soaking coats from getting any wetter. We then met my uni friend & his pooch Nigel who Eliot was very taken with and had food & a catch up. Thankfully the rain had stopped by the time we left to walk back to the car 🙌🏼Moral of the story is plan better, check opening times & the weather! #weekendtrip #brighton #rain #rainraingoaway #Brighton #brighton_ig #unimemories #goodtimes #brightonpier #makingmemories #family #familytime #motherhoodthroughinstagram #motherhoodunplugged #igers #momblogger #mumblogger #instakids #ukparentbloggers #snaphappybritmums
  • T O R N 😢
I adore this photo of my babes I took yesterday 💕
As a SEN parent I’ll be honest and say a lot of my time, focus & attention goes to Nola because of her needs. There are times when Eliot is very aware of this & he struggles, he wants my undivided attention. I do feel torn between them and guilty that the majority of my focus is on Nola whether it’s prepping keto food or doing therapy or being nearby in case she has a seizure so I can stop her from falling flat on her face.
Yesterday we were having lovely time playing in the shopping centre play area and for a few minutes I was  giving my time to Eliot. He wanted to do ‘silly faces’ using stories and we were having a good giggle. Nola was right next to us kneeling up and patting the soft bench. Then all of a sudden she fell to the side just like a tree that had been chopped down, having a tonic seizure. I felt terrible for not preventing her fall. Fortunately the play area has a padded carpet so very soft. My attention obviously had to switch very quickly to Nola. The rest of the evening Eliot was very clingy and needy, I assume because he wanted my attention too. 
Would love to hear any advice/tips from other SEN parents with siblings, how do you balance your time?
#siblings #siblinglove #familytime #bravebaby #NolasJourney #SEND #epilepsy #iamtsc #infantilespasms #epilepsywarrior #littlefierceones #tuberoussclerosis #warrior #infantilespasmswarrior #thisisus #thisparentlife #specialneedsparent #additionalneeds #cameramama #motherhoodunplugged #mumlife #motherhoodthroughinstagram #mumblog #momlife #momblog  #littlebutfierce #snaphappybritmums
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    T O R N 😢 I adore this photo of my babes I took yesterday 💕 As a SEN parent I’ll be honest and say a lot of my time, focus & attention goes to Nola because of her needs. There are times when Eliot is very aware of this & he struggles, he wants my undivided attention. I do feel torn between them and guilty that the majority of my focus is on Nola whether it’s prepping keto food or doing therapy or being nearby in case she has a seizure so I can stop her from falling flat on her face. Yesterday we were having lovely time playing in the shopping centre play area and for a few minutes I was giving my time to Eliot. He wanted to do ‘silly faces’ using stories and we were having a good giggle. Nola was right next to us kneeling up and patting the soft bench. Then all of a sudden she fell to the side just like a tree that had been chopped down, having a tonic seizure. I felt terrible for not preventing her fall. Fortunately the play area has a padded carpet so very soft. My attention obviously had to switch very quickly to Nola. The rest of the evening Eliot was very clingy and needy, I assume because he wanted my attention too. Would love to hear any advice/tips from other SEN parents with siblings, how do you balance your time? #siblings #siblinglove #familytime #bravebaby #NolasJourney #SEND #epilepsy #iamtsc #infantilespasms #epilepsywarrior #littlefierceones #tuberoussclerosis #warrior #infantilespasmswarrior #thisisus #thisparentlife #specialneedsparent #additionalneeds #cameramama #motherhoodunplugged #mumlife #motherhoodthroughinstagram #mumblog #momlife #momblog #littlebutfierce #snaphappybritmums
  • G O O D N I G H T 🤡 
Hope everyone had fun on Halloween 🎃 👻whatever you got up to! My very own Pennywise wanted to say ‘goodnight, sleep tight!’
#halloween #halloween2019 #halloweencostume #IT #pennywise #EliotJude #trickortreat #igkids #instakids #kidsofinsta #worldoflittles #littlebutfierce #littlefierceones #childhoodcaptured #mumlife #momlife #family #motherhood #childhoodunplugged #motherhoodunplugged #motherhoodthroughinstagram #momblog #mumblog #snaphappybritmums
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    G O O D N I G H T 🤡 Hope everyone had fun on Halloween 🎃 👻whatever you got up to! My very own Pennywise wanted to say ‘goodnight, sleep tight!’ #halloween #halloween2019 #halloweencostume #IT #pennywise #EliotJude #trickortreat #igkids #instakids #kidsofinsta #worldoflittles #littlebutfierce #littlefierceones #childhoodcaptured #mumlife #momlife #family #motherhood #childhoodunplugged #motherhoodunplugged #motherhoodthroughinstagram #momblog #mumblog #snaphappybritmums
  • H A P P Y  H A L L O W E E N 🎃 
A throwback to Halloween last year where Eliot went trick or treating for the first time, Nola really doesn’t look too sure! We’ll be heading out later to do it again. Are you trick or treating? 👻 🧛‍♂️🎃
#tbt #throwback #happyhalloween #throwbackthursday #halloween #littlevampire #littlepumpkin #thisdaylastyear #siblings #trickortreat #igkids #instakids #kidsofinsta #worldoflittles #littlebutfierce #littlefierceones #childhoodcaptured #mumlife #momlife #family #motherhood #childhoodunplugged #motherhoodunplugged #motherhoodthroughinstagram #momblog #mumblog
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    H A P P Y H A L L O W E E N 🎃 A throwback to Halloween last year where Eliot went trick or treating for the first time, Nola really doesn’t look too sure! We’ll be heading out later to do it again. Are you trick or treating? 👻 🧛‍♂️🎃 #tbt #throwback #happyhalloween #throwbackthursday #halloween #littlevampire #littlepumpkin #thisdaylastyear #siblings #trickortreat #igkids #instakids #kidsofinsta #worldoflittles #littlebutfierce #littlefierceones #childhoodcaptured #mumlife #momlife #family #motherhood #childhoodunplugged #motherhoodunplugged #motherhoodthroughinstagram #momblog #mumblog
  • H A L F  T E R M 🙌🏼
Glad we’re getting a break from the school run routine next week! Started off the half term with a birthday party this afternoon and where Eliot swallowed yet another tooth he lost 🙄I’m sure that makes it three he’s swallowed! 🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️ He’s written another note to the tooth fairy to let her know about the mishap so he’s hopeful she’ll still leave a coin!  #milestone #EliotJude #sixyearsold #lostatooth #son #toothfairy #igkids #kidsofinsta #kidstagram #motherhoodunplugged #instakids #childhoodcaptured #mumlife #littlebutfierce #childhoodunplugged #momlife #littlefierceones #watchthemgrow #letthembelittle #ibelieve #toothless #motherhoodthroughinstagram #ukparentbloggers #mumblog
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    H A L F T E R M 🙌🏼 Glad we’re getting a break from the school run routine next week! Started off the half term with a birthday party this afternoon and where Eliot swallowed yet another tooth he lost 🙄I’m sure that makes it three he’s swallowed! 🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️ He’s written another note to the tooth fairy to let her know about the mishap so he’s hopeful she’ll still leave a coin! #milestone #EliotJude #sixyearsold #lostatooth #son #toothfairy #igkids #kidsofinsta #kidstagram #motherhoodunplugged #instakids #childhoodcaptured #mumlife #littlebutfierce #childhoodunplugged #momlife #littlefierceones #watchthemgrow #letthembelittle #ibelieve #toothless #motherhoodthroughinstagram #ukparentbloggers #mumblog
  • M R I ✅
MRI number three is done. Nola is still sleeping off the sedation meds (which she fought so hard not to take 😢) on the ward. She came round pretty quickly once she was out of the MRI machine, ate breakfast, drank her milk and went to sleep. I wish I could join her 😴 
NolaBelle #babytrooper #brave #bravebaby #mri #mriscan #october2019 #NolasJourney #babywarrior #babygirl #baby #babystagram #igbabies #babiesofinstagram #additionalneeds #additionalneedsparenting #thisarentlife #motherhoodunplugged #motherhoodthroughinstagram #motherhood #life #mumblogger #raregeneticdisorder #ukparentbloggers #mummyblogger  #momlife #momblogger #snaphappybritmums
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    M R I ✅ MRI number three is done. Nola is still sleeping off the sedation meds (which she fought so hard not to take 😢) on the ward. She came round pretty quickly once she was out of the MRI machine, ate breakfast, drank her milk and went to sleep. I wish I could join her 😴 NolaBelle #babytrooper #brave #bravebaby #mri #mriscan #october2019 #NolasJourney #babywarrior #babygirl #baby #babystagram #igbabies #babiesofinstagram #additionalneeds #additionalneedsparenting #thisarentlife #motherhoodunplugged #motherhoodthroughinstagram #motherhood #life #mumblogger #raregeneticdisorder #ukparentbloggers #mummyblogger #momlife #momblogger #snaphappybritmums
  • S T A N D I N G 👏🏻👏🏻👏🏻
Nola has been amazing when weight bearing over the past week or so! Using gaitors and wearing orthotic boots has no doubt made a huge difference! She can’t bend her legs with the gaitors so doesn’t have a choice but to bear the weight! She is very wibbly wobbly on her ankles but if I hold them in the correct position she can stand for a good 30 seconds plus! I’m so proud of her, my superstar warrior!

#herestomovingforward #inchstones #epilepsy #iamtsc #infantilespasms #keto #ketogenicdiet #tsc #tuberoussclerosis #epilepsywarrior #specialneedsparent #infantilespasmsawareness #infantilespasmswarrior #thisisus #thisparentlife #specialneedsparent #additionalneeds #cameramama #motherhoodunplugged #mumlife #motherhoodthroughinstagram #mumblog #momlife #momblog #snaphappybritmums
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    S T A N D I N G 👏🏻👏🏻👏🏻 Nola has been amazing when weight bearing over the past week or so! Using gaitors and wearing orthotic boots has no doubt made a huge difference! She can’t bend her legs with the gaitors so doesn’t have a choice but to bear the weight! She is very wibbly wobbly on her ankles but if I hold them in the correct position she can stand for a good 30 seconds plus! I’m so proud of her, my superstar warrior! #herestomovingforward #inchstones #epilepsy #iamtsc #infantilespasms #keto #ketogenicdiet #tsc #tuberoussclerosis #epilepsywarrior #specialneedsparent #infantilespasmsawareness #infantilespasmswarrior #thisisus #thisparentlife #specialneedsparent #additionalneeds #cameramama #motherhoodunplugged #mumlife #motherhoodthroughinstagram #mumblog #momlife #momblog #snaphappybritmums
  • This is the face of someone who had over done the booze, cider, Prosecco with chambord, straight Malibu and ginger beer with rum all before heading into Kisstory on the common back in the summer. I’m the one that it takes time for the booze to kick in which just so happened to be at the ‘VIP’ area entrance flanked with security but I insisted I took a rest by sitting on a plant pot! Good times tho and managed to get myself together to enjoy the rest of the day & drink more alcohol 😜I’m out out tonight and can’t bloody wait 🙌🏼 #mumlife #reality #outout #tipsy #kisstoryonthecommon #mumtimeoff #mama
#specialneedsparent #honesty #honestparenting #momlife #thisparentlife #timeoff #friends #haveabreak #momlife #thisisme #lifestyle
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    This is the face of someone who had over done the booze, cider, Prosecco with chambord, straight Malibu and ginger beer with rum all before heading into Kisstory on the common back in the summer. I’m the one that it takes time for the booze to kick in which just so happened to be at the ‘VIP’ area entrance flanked with security but I insisted I took a rest by sitting on a plant pot! Good times tho and managed to get myself together to enjoy the rest of the day & drink more alcohol 😜I’m out out tonight and can’t bloody wait 🙌🏼 #mumlife #reality #outout #tipsy #kisstoryonthecommon #mumtimeoff #mama #specialneedsparent #honesty #honestparenting #momlife #thisparentlife #timeoff #friends #haveabreak #momlife #thisisme #lifestyle