My beautiful girl a few weeks back on the the stunning Tenby beach! Just wanted to say a massive thank you to all that commented on my last post/sent a message/replied to my stories after Nola’s prolonged seizure last week. Unless you experience something similar you will never know how precious those well wishes really are! Nola is never going to get ‘better’ she has her genetic condition for life. How severely it affects her over the years remains to be seen, we have to take each day as it comes. Despite how tough her first year has been she is the happiest, sweet natured soul, I am so proud of her! ❤️ #motheranddaughter #daughter #proudmum #proudmomma #babygirl #additionalneeds #epilepsywarrior #motherhoodunplugged #motherhoodthroughinstagram #thisparentlife #beach #tenby #igbabies #thisisreality #mumlife #momlife #ukparentbloggers #momblogger #littlesnippetsofus #myhappycapture #mummyblogger #sweetgirl #babywarrior #babytrooper
S T A T U S E P I L E P T I C U S - ‘Seizures that last longer than 30 minutes’ - Yesterday Nola had two of her one year immunisations. You may have seen my stories last month which said we were spacing her jabs out, in the hope of preventing any seizure activity. I made the decision for her to have two yesterday, pneumococcal and meningitis...big mistake. I was worried about it being ‘that time of year’ and wanted her to be covered. When you space the jabs out there needs to be a month between them for them to be effective. She was fine yesterday afternoon but whilst I was getting Eliot ready for bed, things changed rapidly. I checked her temperature which had risen but not ‘hot’ at that point. Within ten minutes she had a temperature and I got her some calpol. Swiftly after that I thought something wasn’t right and became aware she was probably in a seizure. She began vomiting, I began panicking. I rang 111 who dispatched an ambulance and after what felt like a lifetime a paramedic arrived, shortly followed by two more. They did all their checks, asked all their questions. From arriving, to hospital they were not certain she was still in a seizure. I knew she was. I asked about ‘rescue meds’ to bring her out of it but the problem was it potentially stopping her breathing. A team of 11 doctors, nurses & anaesthetists worked on Nola when we arrived, two other nurses occupied Eliot. They were all bloody amazing, so incredibly calm as if it was just a scrape on the knee. Two rescue meds later & she came out of a seizure. Well over an hour later. We were sent up to the ward & thankfully she seems to have woken up mostly her usual self. #fuckyougeneticcondition #fuckyouepilepsy #fuckyouimmunisations #NolasJourney #epilepsywarrior #motherhoodunplugged #thisparentlife #bravebaby
CAKE SMASH Spam #2 I throughly enjoyed our cake smash session with @sonyaharrapphotography this photo in the bath after all the cake carnage is definitely one of my faves! Sonya’s own beautiful children came into the studio to help because Nola wasn’t smiling for us adults 🤣 #firstbirthday #specialbirthday #cakesmash #cakesmashsession #birthdaygirl #additionalneeds #NolaBelle #babygirl #darlinggirl #cute #sweet #sweetgirl #instababies #babystagram #worldoflittles #watchthemgrow #letthembelittle #littlefierceones #childhoodcaptured #chilhoodunplugged l #babywarrior #motherhoodunplugged #motherhoodthroughinstagram #littlesnippetsofus #daughter #ukparentbloggers #momblogger #cakesmashspam #sorrynotsorry
C A K E S M A S H 🎂 My little tutti seems back to her usual self after being sedated for her MRI scan yesterday! When we arrived home Nola’s first birthday cake smash photos had arrived so get ready for some spamming 😂 Photo credit @sonyaharrapphotography #firstbirthday #specialbirthday #cakesmash #cakesmashsession #birthdaygirl #additionalneeds #NolaBelle #babygirl #darlinggirl #cute #sweet #sweetgirl #instababy #instababies #babystagram #worldoflittles #watchthemgrow #letthembelittle #littlefierceones #childhoodcaptured #chilhoodunplugged l #babywarrior #motherhoodunplugged #motherhoodthroughinstagram #littlesnippetsofus #daughter #parentblogger #ukparentbloggers #momblogger
My trooper out for the count ready to go for her MRI scan earlier. No general anaesthetic I was expecting but two meds to sedate her. I was sceptical 🤨 about them keeping her asleep as MRI scanners are incredibly loud, if you’ve had one or accompanied your little one you’ll know! I thought she would wake up after a failed ‘feed & wrap’ attempt back in December but thankfully she was completely zonked so hopefully they got the images they needed. She came round on the way back to the ward, was grouchy but had her milk & went back to snooze land 💤 Currently sleeping off those sedation drugs. #NolaBelle #babytrooper #brave #bravebaby #mri #mriscan #october2018 #NolasJourney #babywarrior #babygirl #baby #babystagram #igbabies #babiesofinstagram #additionalneeds #additionalneedsparenting #thisarentlife #motherhoodunplugged #motherhoodthroughinstagram #motherhood #life #mumblogger #raregeneticdisorder #ukparentbloggers #mummyblogger #momlife #momblogger
True story! Are you indoorsy or outdoorsy? On the whole I’m certainly more of an indoors person but I loved all the outdoor activities we did at @bluestonewales last week from forest walks to camp shindigs I would do it over and over again in the stunning surroundings! - - #bluestone #bluestonewales #campsmokey #pembrokeshire #naturalbeauty #nationalpark #freerangefun #ukholiday #familytime #getoffthesofa #getoutdoors #outdoorsy #outdoorfun #holiday #thisparentlife #motherhoodunplugged #motherhoodthroughinstagram #memoriesmade #mumblog #mummyblogger #lifestyle #mumlife #mumblogger #bluestonebloggers #momblog #momlife #ukparentbloggers #parentblog
Me & my babes (or I should say angel😇 & devil😈 child) on our first night at @bluestonewales Unfortunately we’re home now & I’m battling through the washing after a lovely week away! #holiday #holibobs #bluestone #pembrokeshire #wales #ukholidays #family #familytime #motherandchild #freerangefun #son #daughter #mumlife #mumlifestyle #babygirl #kidsofinstagram #kids #kiddos #motherhoodunplugged #motherhoodthroughinstagram #memoriesmade #childhoodunplugged #childhoodcaptured #ukparentbloggers #bluestoneblogger #mumblogger #momblogger #thisparentlife #momlife
T E N B Y 🏖 must be one of the nicest beaches in the UK! Eliot could have spent the entire day playing in the sand, he was in his element! Have you been to Tenby? #occupiedfivenager #letkidsbekids #letthembelittle #littlefierceones #childhoodunplugged #childhoodcaptured #childhoodthroughinstagram #igkids #kidstagram #kidsofinstagram #tenby #tenbybeach #wales #pembrokeshire #littlesnippetsofus #beachlife #playmatters #fiveyearold #son #EliotJude #mumlife #momlife #momblogger #mumbloggers #mumblogger #thisparentlife #holibobs
It was a busy fun packed day at @bluestonewales yesterday! First Nola & I did the senses for babies class, then Eliot had an amazing adventure in the woods doing the Into The Wild activity which usually has up to 12 children but Eliot was the only one so it was 1:1 fun! Den & raft building, eating Welsh cakes and flying Frodo the owl 🦉We went for a swim in the afternoon & then back down to Camp Smokey in the evening for a shindig, finishing off by toasting marshmallows over the fire! #bluestone #bluestonewales #bluestoneblogger #holiday #pembrokeshire #goodtimes #momblogger #mumblogger #motherhoodunplugged #motherhoodthroughinstagram #campfire #campsmokey #shindig #ukparentbloggers #igers
