I’ve been a bit quite on social media recently, because my health took a turn for the worse two months ago. What I thought was a flare up has brought so many new symptoms and I have been struggling to adapt my life to my new level of health. The past two years my health has been continuously declining, it doesn’t matter what I do I can’t stop it. What started off as stomach issues now effects my whole nervous system and joints. I’m now having to deal with the medical merry go round to try and figure out what is wrong with me. I always try my hardest to see the positive in things, but I’d be lying if I said I wasn’t really struggling with this. I’ve been grieving my old life and the old me, the one who wasn’t in constant pain, could hang out with friends, could walk easily and could eat whatever I wanted and just eat in general without being unable to move for hours afterwards. My doctor referred to me recently as 90 year old grandmother in a 16 year olds body, which is sad but true. I’m fighting everyday to not end up in hospital. This is the reality of chronic illness, it’s painful, frustrating and all round sucky. - How do you deal with flare ups and new symptoms?
NEW BLOG POST // How To Become A Student Of Life | PART 2 📚💗 • The How To Become A Student Of Life series started because I struggle with learning difficulties and with school. I know what’s it’s like to feel stupid and It wasn’t until recently when I started learning about things I’m passionate and discovered about being a student of life, that I didn’t feel so stupid anymore. And I wanted to share what I’ve learnt because I know I’m not alone in this. But we are all intelligent! Its just about finding our passion and how we learn best. ❤️😊 • In part 1 of How To Become A Student Of Life, we discovered your unique learning style and what environment you learn best in. In part 2 I’m sharing easy ways you can make learning a part of your daily life, you can adapt these tips and habits to work with your chosen passion or topic you are learning about. ✨💻 - How do you make time for learning about your passion or hobby?
MY STORY PART 4 • ⠀ I was pretty nervous about starting rehab as I couldn’t even make it through the 20 minute eye test to get the diagnosis, I felt to sick and dizzy. I was told I would need 20 weeks of Vision Therapy minimum, so one session EVERY week and daily exercises aka homework 1-2 x a day. As well as Crainosacral Therapy (a form of osteopathy) in conjunction. For those who don’t know, Vision Therapy is a variety of treatments based around eye exercises. Some involved reading, lenses, metronomes and my mums personal favourite catching and throwing. Mainly because she got to throw bean bags at me while I walked along the beam😂🤹🏼♂️Some were like games and really fun, others not so much. I struggled a lot as it made me very sick and dizzy, what I didn’t even think of though was the effect it would have on my life out of the sessions. ⠀ • ⠀ Because my visual system is so sensitive doing both the VT and cranisacral therapy was to much and I soon ended up bed bound due to sever vertigo. 🛌✨Any time I tried to get up my vision would go black and I’d drop to the ground. I only left the house to go to treatments. ⠀ •⠀ The only way for it to improve was to keep going, I stopped cranio and continued with Vision Therapy. Slowly but surely I started seeing improvements and after 5 weeks I was no longer bed bound. ☺️💗But as we came to the end of the 20 weeks we soon realised it was not going to be a quick process, as my vision is so sensitive we have to take things really slow. I was told realistically I’d need 1-2 years of vision therapy. ⠀ Around that time I had just started part time at school and I wanted some time to just be a teenager. 👩🏼💻🎒I was also struggling balancing school work with the effects of VT, so we decided to take a 6 month break... • P.s please excuse the awful photo quality xx
I did my first podcast interview! I still can’t believe it but my beautiful friend @carlyallisonxo interviewed me on her podcast Love, Carly Allison the other week. We chatted all about my chronic illness journey and how I mange it, dealing with anxiety as well as a bit about blogging. • Doing this was a big step out of my comfort zone, not going to lie I was literally shaking after we finished 😂 But I am so proud of how it turned out and the response I have gotten has meant the world to me ❤️ If you haven’t already make sure you go and check it out, you can find it on Apple Podcast, Spotify and other streaming services just search up Love, Carly Allison. And make sure you go and show Carly some love xx • ~ What’s your favourite podcast?
The travel bug is definitely hitting me hard atm, probably because today last year my Mum and I set off on our biggest adventure yet. We sold and gave away 90% of our belongings, packed up our 3 cats and 2 dogs into a motor home and set off across Australia to our new home in Cairns 🚐🛣 • By far it was one of the best and most stressful times of my life, mainly because on day 3 our motor home broke down 😂 Along the way I learnt: • The true kindness of strangers • I am an absolutely awful navigator as I have zero sense of direction • We have the most chilled pets who would happily travel the world with us • My mum and I can be in a tiny space for long periods of time and not kill each other haha • I absolutely LOVE travelling and would definitely do it again! • Swipe to see some of the memories I recorded during our trip ➡️❤️ - What is your favourite place you have ever travelled to and what lesson did you learn along the way? ✨🌿
MY STORY PART 3⠀ A lot happened in the 2 years after my accident, it still all feels like a blur. I had left my new school after 2 terms and switched to online school as my strange attacks become more frequent, my anxiety continued to spike and my learning difficulties got worse. There were so many strange symptoms that doctors continued to brush off ⠀ •⠀ At a last ditch attempt to get answers we went to a new doctor, it took her less than 10 minutes to pick up that my eyes weren’t tracking properally and she sent me straight to a behavioural optometrist. There I was diagnosed with Post Traumatic Vision Syndrome or PTVS 👀⠀ •⠀ Basically the signals between my eyes and my brain don’t match up, what my eyes see vs what my brain receives are two different things. That means that I experience things like:⠀ -Vertigo (the strange attacks) ⠀ -Migraines ⠀ -Loss of balance⠀ -Learning difficulties ⠀ -Memory and concentration issues⠀ -Motion sickness⠀ -Confusion With left and rights⠀ - Visual overload⠀ -Light sensitivity ⠀ -Lack of spacial awareness (aka ridiculously clutzy)⠀ A big reason I wanted to share about this is because it’s a soft tissue damage to the brain it’s often not picked up on MRI’s and CT scans, meaning that so many people go through life not knowing what is wrong with them or doing anything to fix it. ⠀ I was so grateful and happy to finally have an answer to what was going on with me but daunted for the rehab road ahead of me🛣🧠
So excited to finally announce that I am a Global Brand Leader for the amazing charity @InvisiYouth 💛💛 • InvisiYouth is a non for profit charity that helps teens and young adults around the world with chronic illnesses and disabilities gain the right tools and advice to live life regardless of their illness/disability. Through events and other lifestyle programs and tools. I especially love that InvisiYouths focus is to help everyone, instead of a specific illness or disability. This year InvisiYouth launched their leadership program in Australia for the first time. 🇦🇺I am so excited to be working along side the other Aussie GBLs to make a difference in Australia and my local community! As well as to become a better advocate for invisible illness, as I discovered earlier this year how passionate I truly am about it. So I cannot wait to put my passion to action 💛💛
“Keep your eyes on the stars and your feet on the ground”✨🌿 • Being a creative and massive dreamer I can get so caught up in my dreams and the future that I forget to live and enjoy the moment I’m in. Having dreams is important but don’t wait for the next big thing to make your life better, do something each day, big or small that will make you happy. And bring you a little closer to your dream. ☺️🌻 • - What is your dream and how can you make it a part of your life today?
MY STORY PART 2⠀ Fun fact about me, growing up I was the horse crazy kid. I lived and breathed horses, my Godmother had me on a horse before I could even walk. I’d always had this deep connection with horses and they helped me to manage my anxiety. If you had have told me back then that one day I wouldn’t be riding and be scared anytime I was around horses I would have called you crazy! 💗🐎⠀ • ⠀ But when I was 11 everything changed. I had a pretty bad horse accident. The above photos are actually 30 minutes before my accident, but this gorgeous boy was not the one that bucked me. I was riding a friend of a friends pony, who unfortunately for me got a fright and took off to a gallop, he bucked me before I could pull him up. I remember flying through the air like Superman, I managed to tuck slightly but I landed on the top of my head and flipped onto my back. At the time luckily not much was wrong other than a concussion and bad whiplash. ✨🤕⠀ • ⠀ Life went on after my accident, though I wasn’t riding anymore. I’d started at a new school the week of my accident, it went smooth at first but then weird things started happening. My anxiety became out of control, I wasn’t understanding or remembering anything I’d learnt in class. And I’d started getting these attacks, where my vision would go, I’d get horrible head pain, pins needles, my ears would ring and I’d drop to the ground as my balance would disappear. I went to the doctors countless times but they just told me it was anxiety and all in my head, the irony of that though is it actually was in my head...