What a beautiful day for the inaugural walk 4 NF in Columbia, MO.
NF Midwest's set up at the 10th Annual Conference on Advancing Rare Disease Research, Therapy, and Patient Advocacy at the Boler-Parseghian Center for Rare and Neglected Diseases held Saturday, March 2nd. #endnf
It's a small world after all. Our executive director met some NF Midwest peeps getting care at the NIH when she was there with her daughter.
Thank you @repblaine for the nice welcome for @nfmidwest when we came knocking! #endnf #nfadvocates
The NF Midwest team is starting the day.... we're ready to push for funds for neurofibromatosis and schwannomatosis research. #NFAvocates #endnf
Thank you to @repgwenmoore for taking the come to visit with our NF Midwest Young Adult Leaders #nfyaleaders.
The NF Midwest kids that flew out of Chicago are back! Sounds like they had a lot of fun!
Jenny from our Faces of NF series - My Story, My NF. Read her story https://www.nfmidwest.org/blog/jenny-a-face-of-nf/
Our.new friend, Teddy, from the Great Steps 4NF walk in Madison, WI.